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Establishing a dementia registry could improve allocation of brain health resources in Virginia

In Virginia, a dementia registry project is on the verge of being codified into state law to prioritize brain health and ensure equitable allocation of resources. The Virginia Memory Project, a collaboration between Virginia Commonwealth University and the Virginia Department of Health, is focused on cataloging dementia cases and other neurodegenerative diseases in the state to inform the development of public policy.

Recent bills have been introduced in the House and Senate to reauthorize the original 2018 act that established this registry. The registry collects data on disease cases and the number of caregivers in the state, with the goal of providing policymakers and public health leaders with information about the prevalence of the disease, resource allocation, and policy solutions for individuals living with cognitive impairment and their caregivers.

LeadingAge Virginia has expressed support for the legislation, emphasizing the importance of collecting data related to brain health, memory, and caregiving for all adult Virginians. Melissa Andrews, President and CEO of LeadingAge Virginia, stated that the information gathered through this project will help prioritize resources for individuals with memory loss and caregivers throughout the state, including those in various care settings beyond just assisted living facilities.

Currently, over 700,000 cases of dementia have been identified through this project across Virginia. Individuals aged 18 and older can participate by completing a confidential online survey. This initiative aims to provide valuable data to support

By Samantha Jones

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